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Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!
1. Abilities Expo 2016
At the Abilities Expo, you will have the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.
2. Muscular Dystrophy Association (MDA) Resources
Find out about the many services the Muscular Dystrophy Association provides to people with neuromuscular diseases.
3. Getting a Handicapped Parking Permit
When I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.
4. Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
5. Airport Security and Disability
Going through airport security checkpoints can be daunting, especially when mobility issues make assistive devices necessary. Learn about how the Transportation Security Administration (TSA) has anticipated these needs and has made provisions for screening individuals with mobility issues.
6. Spiritual Journaling
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with God. Journaling has also been found to have important health benefits.
7. Mitochondrial Myopathy
The mitochondrial myopathies are a group of genetic diseases that affect the mitochondria in the cells. These diseases are considered to be a neuromuscular disease, although this disease affects all the cells of the body.
8. Charcot Marie Tooth Disease (CMT)
Charcot Marie Tooth – A funny name, but for the estimated 2.6 million people worldwide who have CMT, including myself, it’s no laughing matter. Charcot Marie Tooth actually refers a group of genetic diseases that affect the peripheral nervous system.
9. What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
10. Tales of a Shambassador
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2015, I was again asked by my regional MDA office to act as a Shambassador. My duties include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
Be sure to visit the Neuromuscular Diseases Archives for all the articles!
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