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Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!
1. Is Charcot Foot the Same as Charcot Marie Tooth?
Although Charcot Foot, also called Charcot’s arthropathy or neuroarthropathy, has some of the same symptoms as Charcot Marie Tooth, these two diseases have different causes. Careful diagnosis is required to receive the proper care for these two distinct diseases.
2. TSA Cares Helpline
The Transportation Security Administration (TSA)provides a helpline dedicated to helping travelers with disabling conditions or medical issues called TSA Cares, created to answer concerns regarding security screening policies and procedures related to individuals with medical needs and disability.
3. Newborn Screening and Neuromuscular Disease
As diagnosis and treatment protocols become more advanced, newborn screening will likely become increasingly possible for neuromuscular disease. As these advances are made, ethical and practical decisions regarding newborn screening for neuromuscular disease will need to be made.
4. Accessible Voting in the U.S.
Voting in elections remains a fundamental right, privilege, and responsibility for each U.S. citizen. In the past, polling places were not always easily accessible to those with mobility issues or other disabilities. Today, federal laws require that polling places be accessible.
5. Newborn Screening Saves Lives Reauthorization Act
The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281/S. 1417) was recently passed into law. This Act reauthorizes federal programs related to newborn screening.
6. Balance, Darkness, and CMT
The sudden darkness in the movie theater caught me off guard, and, off balance, I could not walk. I found that I had to wait until my eyes adjusted to the dim light enough to aid my balance to begin walking again. Soon, however, I was headed up the steps and to my seat to enjoy the movie.
7. The Sound of a Wild Snail Eating Book Review
The Sound of a Wild Snail Eating, by Elisabeth Tova Bailey, recounts Ms. Bailey's observations of and relationship with a snail. A friend brought her the snail while she was incapacitated by a mysterious neuromuscular disease that left her unable to walk, sit, or care for herself.
8. Managing Caregiving Stress
Caregiving stress should be taken seriously and, left untreated, can lead to caregiver burnout. While the demands of caregiving may lead to stress, recognizing and taking action to manage caregiving stress will benefit the well-being of both the caregiver and the care receiver.
9. What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
10. Developing Resilience
Resilience has been defined by psychologists as the ability to adapt well to the difficulties in our lives including all kinds of adversity and stress. Resilience can help those of us who are coping with significant health challenges such as dealing with neuromuscular disease.
Be sure to visit the Neuromuscular Diseases Archives for all the articles!
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