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Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!
1. Kyphosis in Neuromuscular Disease
Kyphosis is a type of abnormal spinal curvature that causes the spine to curve excessively, causing a bowing or rounding. This leads to a posture that appears to be slouching or ‘hunchbacked.’ Curvature in the spine in individuals with neuromuscular disease usually affects the whole spine.
2. Tales of a Shambassador
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2015, I was again asked by my regional MDA office to act as a Shambassador. My duties include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
3. Centers of Excellence and Neuromuscular Disease
Centers for Excellence provide cost efficient expert health care, leading to optimal outcomes. For individuals with neuromuscular disease, visiting a Center for Excellence can provide the opportunity for high quality, comprehensive medical care.
4. MDA Transitions Center
The Muscular Dystrophy Association Transitions Center focuses on the needs of teens and young adults with neuromuscular disease. Launched in 2011, this site offers support, information, and resources targeting this group while also raising awareness of the challenges this group will experience.
5. What is a Rare Disease?
Neuromuscular diseases are considered to be rare diseases. What qualifies the various neuromuscular diseases to be considered as rare?
6. International Clinical Trials Registry Platform
The World Health Organization (WHO) maintains an international registry of clinical trials. The International Clinical Trials Registry Platform (ICTRF) lets clinical researchers communicate their research efforts internationally through registering their clinical trials.
7. Roussy-Levy Syndrome
Roussy-Levy Syndrome, also known as hereditary areflexic dystasia, affects the peripheral nervous system. Distinctive characteristics of this variant of CMT include tremors (rhythmic shaking) in the hands and arms and unsteadiness of gait (gait ataxia).
8. Classical Stretch Workout Review
Wondering how I could I get a good workout with non-impact exercise, I found one of my favorite options on public television – a 30-minute exercise program called Classical Stretch.
9. MDA's Free Webinar Series
The Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.
10. Genetic Disorders Sourcebook Review
Overall, the Genetic Disorders Sourcebook is a useful reference. It contains much valuable information in a well-researched and easy to read format for individuals with inherited neuromuscular disease and/or other inherited disorders.
Be sure to visit the Neuromuscular Diseases Archives for all the articles!
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