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g Neuromuscular Diseases Site

BellaOnline's Neuromuscular Diseases Editor

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 T O P   T E N  

Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!

1. A Teacherís Guide to Neuromuscular Disease Review
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, A Teacherís Guide to Neuromuscular Disease will help answer these questions for teachers and parents.

2. CMT Awareness Month 2015
Recently, I had the opportunity to speak over the telephone with Bethany Meloche. During our conversation we discussed her history of diagnosis, her involvement with the CMTA, and the Charcot Marie Tooth Awareness Month 2015.

3. New Balance WW928 Shoe Review
Finding the right shoe to accommodate my needs is not easy. Currently, the shoe that I most often wear is a pair of extra-depth walking shoes made by New Balance (model WW929).

4. What is Range of Motion Therapy?
Range of motion therapy refers to a form of physical therapy designed to stretch muscles, keep joints flexible, decrease pain, and lessen the development of contractures. It may be effective for many individuals with neuromuscular disease, even those who cannot engage in more strenuous activities.

5. Stress, Expectation, and Change
Broadly defined, there are two types of problems. There are problem that can be changed, fixed, improved, or made better, and problems that cannot. Spending time focusing on unfixable problems can become a major source of stress.

6. MDA Summer Camps
Without specialized MDA camps, many children with neuromuscular disease might never have the opportunity to attend a summer camp, as most summer camps are not equipped to handle the specialized health needs and appropriate adaptations in activities for a child with neuromuscular disease.

7. My Child Has CMT Review
The publication My Child Has CMT: A guide for parents of children with Charcot-Marie-Tooth can help to answer the many questions parents of a child with CMT will have, and will help parents to connect their child with treatment and resources.

8. Balance Walking and Neuromuscular Disease
Balance walking (also called Nordic walking, walking with poles, or walking with trekking poles) offers many health benefits. Recently, Krin Patrie, Director of Balance Walking, spoke with me about the benefits of walking with poles, including the benefits for people with neuromuscular disease.

9. Ice Bucket Challenge for ALS 2015
Last summer, the Ice Bucket Challenge raised much needed funding and awareness for ALS. According to the ALS Association and MDA, the Challenge is being extended again during August of 2015. Get involved!

10. What is the Disability Equality Index?
The Disability Equality Index (DEI) will provide a summary index of the inclusion practices of U.S. businesses regarding employment of individuals with disability. Ranging from 0 to 100, the index score will provide an objective benchmark measure.



Be sure to visit the Neuromuscular Diseases Archives for all the articles!



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A Teacherís Guide to Neuromuscular Disease Review

CMT Awareness Month 2015

Stress, Expectation, and Change

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