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Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!
1. What is a Rare Disease?
Neuromuscular diseases are considered to be rare diseases. What qualifies the various neuromuscular diseases to be considered as rare?
2. Genetic Disorders Sourcebook Review
Overall, the Genetic Disorders Sourcebook is a useful reference. It contains much valuable information in a well-researched and easy to read format for individuals with inherited neuromuscular disease and/or other inherited disorders.
3. Abilities Expo 2015
At the Abilities Expo, I had the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.
4. Roussy-Levy Syndrome
Roussy-Levy Syndrome, also known as hereditary areflexic dystasia, affects the peripheral nervous system. Distinctive characteristics of this variant of CMT include tremors (rhythmic shaking) in the hands and arms and unsteadiness of gait (gait ataxia).
5. MDA’s Shamrocks Against Dystrophy Program 2015
Each year, retailers all over the U.S.A. sell green Shamrocks and gold Shamrocks. The money raised through the Shamrocks Against Dystrophy Program funds research, education, summer camps through the MDA. In 2014, Shamrocks raised $21 million!
6. MDA's Free Webinar Series
The Muscular Dystrophy Association (MDA) has produced a series of free live and archived educational presentations called the Public Webinar Series. Expert-led topics include a variety of important issues. Make time to attend a high quality educational presentation from your own home.
7. Classical Stretch Workout Review
Wondering how I could I get a good workout with non-impact exercise, I found one of my favorite options on public television – a 30-minute exercise program called Classical Stretch.
8. International Clinical Trials Registry Platform
The World Health Organization (WHO) maintains an international registry of clinical trials. The International Clinical Trials Registry Platform (ICTRF) lets clinical researchers communicate their research efforts internationally through registering their clinical trials.
9. Interactive Games for Young Children
Everyone loves to play, including babies and young children with disabilities that limit their mobility. Interactive movement games engage young children, gently exercise their muscles, teach them about social interactions, and help you to have fun together. Get started with a couple of examples.
10. Newborn Screening and Neuromuscular Disease
As diagnosis and treatment protocols become more advanced, newborn screening will likely become increasingly possible for neuromuscular disease. As these advances are made, ethical and practical decisions regarding newborn screening for neuromuscular disease will need to be made.
Be sure to visit the Neuromuscular Diseases Archives for all the articles!
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