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Here are the top ten articles for the Neuromuscular Diseases Site! These rankings are live and get reset at the beginning of each month, so check back often to see what your fellow visitors are most interested in!
1. Abilities Expo 2016
At the Abilities Expo, you will have the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.
2. Muscular Dystrophy Association (MDA) Resources
Find out about the many services the Muscular Dystrophy Association provides to people with neuromuscular diseases.
3. Getting a Handicapped Parking Permit
When I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.
4. Spiritual Journaling
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with God. Journaling has also been found to have important health benefits.
5. Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
6. Airport Security and Disability
Going through airport security checkpoints can be daunting, especially when mobility issues make assistive devices necessary. Learn about how the Transportation Security Administration (TSA) has anticipated these needs and has made provisions for screening individuals with mobility issues.
7. Roussy-Levy Syndrome
Roussy-Levy Syndrome, also known as hereditary areflexic dystasia, affects the peripheral nervous system. Distinctive characteristics of this variant of CMT include tremors (rhythmic shaking) in the hands and arms and unsteadiness of gait (gait ataxia).
8. A Teacher’s Guide to Neuromuscular Disease Review
Both teachers and parents will have many questions about how to best support a child with neuromuscular disease in the classroom. Available free from the MDA website, A Teacher’s Guide to Neuromuscular Disease will help answer these questions for teachers and parents.
9. Tales of a Shambassador
As area businesses again blossomed with green and gold Shamrock’s during February and March of 2015, I was again asked by my regional MDA office to act as a Shambassador. My duties include visiting area businesses that participate in the MDA Shamrocks program to say thank you.
10. CMT Exercise Video Series from the CMTA
The Charcot Marie Tooth Association (CMTA), has been producing a series of short instructional videos demonstrating physical therapy exercises for individuals with Charcot Marie Tooth. Currently 4 of these videos are available at no cost at the CMTA website, with an additional 3 videos planned.
Be sure to visit the Neuromuscular Diseases Archives for all the articles!
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