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The Upside of Down Times Book Review
I found something to be grateful for when a copy of The Upside of Down Times by Lisa Ryan arrived unexpectedly in the mail. Eagerly, I devoured this book in less than a day, and renewed my commitment to keeping a gratitude journal, and to showing my gratitude to others.
Performance Anxiety and Advocacy
Increasingly, I have opportunities to speak to others about neuromuscular disease. In the past, I sometimes experience performance anxiety before or during speaking, but I have been learning to manage my stage fright.
Gratitude and Neuromuscular Disease
Take the time to cultivate thankfulness. Then, express gratitude to others. Not only will you enhance your own wellbeing, you will brighten another person’s day as well.
Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.
What is proprioception?
While most student learn about the “five senses” in grade school, fewer students learn about an important sixth sense, proprioception. Proprioception involves the sense of where one’s body is in space, and is closely related to another important but often overlooked sense, one's sense of balance.
History of Voting Accessibility in the U.S.
Voting in elections remains a fundamental right, privilege, and responsibility for each U.S. citizen. In the past, polling places were not always easily accessible to those with mobility issues or other disabilities. Today, federal laws require that polling places be accessible.
Journaling and Neuromuscular Disease
The benefits of personal writing have been well documented, but people find it difficult to get started. To help you, I have provided a few journaling prompts about the experience of having a neuromuscular disease to help you begin your journaling practice.
TSA Card Available for Travelers with Disability
While traveling through security checkpoints with a disability may not be easy, clear communication with the TSA Officers regarding one’s disability will simplify the process. The TSA Disability Notification Card may make moving through airport security a little bit easier.
21st Century Cures Initiative - Update
21st Century Cures, an important initiative at the U.S. federal level, was formed to find ways to accelerate the discovery and delivery of medical treatments for disease. Read about the newest developments regarding this bill.
Respecting My Own Physical Limitations
When I fail to respect my physical limitations and rely on my own strength, I can easily over to it, and even hurt myself. When I respect the limitations that the neuromuscular disease Charcot Marie Tooth causes me, I avoid hurting myself, and, ultimately, can accomplish more.
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