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What is the 21st Century Cures Initiative?
21st Century Cures, a new initiative at the U.S. federal level, was formed to find ways to accelerate the discovery and delivery of medical treatments for disease.
MDA Free Informational Resources
The Muscular Dystrophy Association (MDA) offers a variety of free resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease. Many MDA publications are available in Spanish as well.
Worldwide Neuromuscular Disease Consortia
Across the world, individuals are affected by neuromuscular disease. In this article, you will find a list of website addresses for international directories, consortia, networks, and groups that serve the worldwide neuromuscular disease community internationally.
International Neuromuscular Disease Organizations
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web addresses for organizations that serve individuals with neuromuscular disease in countries across the world.
Filling the Boot for MDA
Each summer, you will likely see fire-fighters collecting funds at local parades and events. When you see your local firefighters campaigning to raise funds for the MDA, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!
Accessible Voting in the U.S.
In the past, voting in the U.S. was not always easily accessible to those with mobility issues caused by neuromuscular disease or other disabilities. Today, however, federal laws require that polling places be accessible.
That All May Worship Resource Review
Too often, individuals with disability, including neuromuscular disease, have been excluded from religious participation. That All May Worship: An Interfaith Welcome to People with Disabilities will be useful towards eliminating barriers to access and making places of worship truly inclusive.
Influenza Season 2014-2015
Influenza, caused by a virus, primarily affects the respiratory system. Influenza is also known as the flu, seasonal flu, or respiratory flu. While the flu vaccine will not protect against all cases of influenza, it does provide significant protection.
Ice Bucket Challenge for ALS
Today, I took the Ice Bucket Challenge for ALS. I also made a donation to the ALS Association. I now extend the challenge to you! Do what you can to raise awareness and help efforts to find better treatments and a cure for ALS.
CMT Awareness Month 2014
Soon after last year’s successful CMT Awareness Month finished, organizers of the CMT Awareness Month 2014 began planning for the 2014 event. Through this event, the Charcot Marie Tooth Association (CMTA) educates the public and raises awareness about the neuromuscular disease Charcot Marie Tooth.
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