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The Sound of a Wild Snail Eating Book Review
The Sound of a Wild Snail Eating, by Elisabeth Tova Bailey, recounts Ms. Bailey's observations of and relationship with a snail. A friend brought her the snail while she was incapacitated by a mysterious neuromuscular disease that left her unable to walk, sit, or care for herself.
Keeping a Gratitude Journal
Give keeping a gratitude journal a try! You might just find that keeping a gratitude journal becomes an important tool for maintaining and increasing your joy and happiness.
Managing Caregiving Stress
Caregiving stress should be taken seriously and, left untreated, can lead to caregiver burnout. While the demands of caregiving may lead to stress, recognizing and taking action to manage caregiving stress will benefit the well-being of both the caregiver and the care receiver.
What is Caregiving Stress?
Caregiving stress arises from the emotional and physical challenges of providing caregiving. While caregiving for family member can be rewarding, caregivers often experience stress. Long term caregiving stress can lead to caregiver burnout if unrecognized and untreated.
Quizzes About Neuromuscular Disease
Try the six quizzes related to the Neuromuscular Diseases site, including the newest, the Neuromuscular Disease and the Feet Quiz. Quizzes give you a chance to test your knowledge in important areas that affect those with neuromuscular disease. Plus, they are fun and you just might learn something
Worldwide Neuromuscular Disease Consortia
Across the world, individuals are affected by neuromuscular disease. Finding effective information, support, and services plays a key role in managing neuromuscular disease. Access a list of website addresses for international consortia that serve the neuromuscular disease community worldwide.
What is the 21st Century Cures Initiative?
21st Century Cures, a new initiative at the U.S. federal level, was formed to find ways to accelerate the discovery and delivery of medical treatments for disease.
MDAs Free Informational Resources
The Muscular Dystrophy Association (MDA) offers a variety of free informational resources about neuromuscular disease. Updated regularly, these resources cover a wide variety of topics related to neuromuscular disease.
International Neuromuscular Disease Websites
People from all over the world suffer from neuromuscular disease, and need to find accurate, appropriate, and effective information, support, and services. This article lists some of the web-links to organizations that serve the worldwide neuromuscular diseases community.
Filling the Boot for MDA
You may see fire-fighters collecting funds at local parades and events. When you see your local firefighters campaigning to raise funds for the MDA, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!
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