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Abilities Expo 2016
At the Abilities Expo, you will have the opportunity to learn about the many products, services, and non-profit organizations that serve those with physical challenges, including those with neuromuscular disease. Admission to the Abilities Expo is free.
Getting a Handicapped Parking Permit
When I asked about receiving a handicapped parking permit, I received paperwork for a permanent placard. Find out more about who qualifies for a handicapped parking permit and how to obtain one if you do.
Recently, much of my journaling has taken the form of spiritual journaling. I have found this to be a valuable practice to help me cope with the neuromuscular disease, remember my many blessings, and strengthen my walk with God. Journaling has also been found to have important health benefits.
Extraordinary Measures Movie Review
The movie Extraordinary Measures was inspired by the true story of a family’s involvement in the search for a treatment for the neuromuscular disease Acid Maltese Deficiency (Pompe disease). This movie shows the power of hope and the human spirit to overcome seemingly insurmountable obstacles.
Pompe Disease, more formally known as Acid Maltease Deficiency (AMD), leads to progressive weakness of the muscles in the hips, upper legs, upper arms, and respiratory system. The infantile onset form also affects the muscles of the heart.
Homelessness and Physical Disability
According to a recent report, in 2014, for disabled individuals relying on U.S. Social Security Supplemental Income as their main or only source of income, SSSI does not cover the cost of a modest one bedroom apartment. An estimated 19% of homeless adults in the U.S. are disabled.
The Upside of Down Times Book Review
I found something to be grateful for when a copy of The Upside of Down Times by Lisa Ryan arrived unexpectedly in the mail. Eagerly, I devoured this book in less than a day, and renewed my commitment to keeping a gratitude journal, and to showing my gratitude to others.
Performance Anxiety and Advocacy
Increasingly, I have opportunities to speak to others about neuromuscular disease. In the past, I sometimes experience performance anxiety before or during speaking, but I have been learning to manage my stage fright.
Gratitude and Neuromuscular Disease
Take the time to cultivate thankfulness. Then, express gratitude to others. Not only will you enhance your own wellbeing, you will brighten another person’s day as well.
Balance and Neuromuscular Disease
While everyone knows about the “five senses” – sight, hearing, smell, taste, touch – little attention is paid to another of important sense, the sense of balance, unless problems develop. Many of the neuromuscular diseases affect balance.
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