Did you know that if you can contact the White House directly? If you are a U.S. citizen, making your voice heard to influence governmental decisions is your right and responsibility. Contacting the President of the United States at the White House is one of the ways that you can do this.

The Challenged Athletes Foundation supports the athletic efforts of individuals with physical challenges. Rather than focusing on disability, this organization focuses on the abilities of athletes with physical challenges in order to create acceptance and respect.

In retrospect, I learned a lot from my first visit to a neurologist about how to be better prepared for future visits to the neurologist and to other physicians that I would be referred to see.

Registering with the ICN was quick and easy. If you have CMT, consider registering with the INC so that you can be part of the search for more effective treatments and cures for the inherited neuropathies.

The hobby of “letterboxing” has been growing. It involves hiking and navigational skills, with the fun of finding a “treasure” at the end of the hike. Trails can be selected by level of difficulty and wheelchair accessibility, making this a great hobby for individuals with neuromuscular disease.

When you see your local firefighters campaigning to raise funds for the MDA through Fill-the-Boot, make sure to say thank you. Let them know how the MDA has helped you and your family. And, make sure to help fill the boot!