Discrimination and Neuromuscular DiseaseThe Americans with Disabilities Act protects Americans with disabilities, including those caused by neuromuscular disease, from discrimination. I now believe, however, that I should have asserted my right to reasonable accommodation on my behalf by my employer. Coloring Pages Featuring Children with DisabilityA variety of free downloadable coloring booklets, pages, and activities for young children can be found on the internet. This article lists some of the websites with coloring pages and booklets available that highlight children with disabilities including mobility issues. Writing to Find MeaningOften, it becomes difficult to find the meaning behind the difficulties we go through. Experiencing a neuromuscular disease can leave one wondering how to make sense of it all. Many people find writing to be cathartic. The technique called clustering can help you to find meaning in your situation. Neurology Now MagazineNeurology Now, a magazine published by the American Academy of Neurology, and its companion website provide readers with accurate and readable articles about a variety of neurological diseases, including neuromuscular disease. Social Networks and Neuromuscular DiseaseSocial networking has made connecting with others easier than ever. This can be especially true for those who have significant disability limiting their opportunities to interact with others in person, including many people with neuromuscular disease. Support Groups and Neuromuscular DiseaseIf you do not yet belong to a support group, I strongly urge you to find a support group in your area or online. The relationships that you build will help you to live, cope, and even thrive despite neuromuscular disease.
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